Walk or Run In The Park for Scleroderma happening Sunday in Sylvan Lake
The Scleroderma COMMUNITY is busy preparing for our Walk or Run in the Park for Scleroderma being held on June 18, 2017 at Centennial Park in Sylvan Lake.We would ask you to be a part of the excitement!!
This is year two for the Alberta walk. 2016 saw 9 walks across Canada, raising $356,479. In June of 2017, there are 14 walks happening across Canada.
Many of our patients feel so alone with this disease. It’s a long road for them to even get a diagnosis. And when they are, it is a another road for them to find medical doctors who know how to care for them.
Scleroderma is a chronic, often progressive autoimmune disease – like rheumatoid arthritis, lupus and multiple sclerosis – in which the body’s immune system attacks its own tissues. The disease, which literally means “hard skin,” can cause thickening and tightening of the skin as well as serious damage to internal organs including the lungs, heart, kidneys, esophagus and gastrointestinal tract. Scleroderma is not considered a hereditary disease and is not contagious. Scleroderma affects approximately 1 in 2500 Canadian men, women and children of all ages. For most people with scleroderma, the disease has a serious impact on daily life; for some individuals, scleroderma is a life altering disease and for others, it can become a life-threatening one. There are medications to slow down disease progression and help with symptoms, but as of yet, there is no cure for scleroderma.